Hi, my name is Helena Mc Loughlin.
I was diagnosed with SCLE Lupus two years ago after having had a skin rash that covered my chest for about six months at a time over the previous four years. I eventually showed it to a dermatologist who took a biopsy and diagnosed SCLE Lupus. It is an autoimmune disorder which is mainly triggered by exposure to sunlight. This means I am extremely sun sensitive - even the winter sun is very dangerous for me.
When my lupus flares I get an ugly skin rash and am very unwell with aching joints and terrible fatigue. I have always been an outdoor person, a gardener and golfer and need to be able to get out and about. I am learning ways to do this. SP50 suncream doesn't work for me. It is messy, gets in my eyes and aggravates my skin.
I now wear UPF 50 leggings and long-sleeved tops with high collars or hoods, a big sunhat and sun gloves. I have searched the web for suppliers and have tried many but the one I find the best for me is Solbari's Sensitive range. The fabric is fantastic, no overheating.
Thanks Helena, for sharing your story with us and our Solbari Community.
The Solbari Team
Over the coming weeks, we will be publishing some stories from the Solbari Community to help raise awareness about skin cancer, melanoma, skin conditions and sun protection.
If you are interested in sharing your story, please answer the following questions from the relevant questionnaire and send us a picture of yourself being sun safe in the outdoors.
We will be running 2 questionnaires...
Your skin is your largest organ and has a long memory. Sun exposure and ultraviolet (UV) damage is cumulative throughout your life. Research shows that sun damage contributes to more than 90% of wrinkles, brown spots, premature skin ageing as well as precancerous and cancerous skin lesions.
Limiting sun exposure is very important, as the UV rays cause the most damage to the skin. It often takes many years and sometimes decades for the effects to become visible.