Hi, my name is Helena Mc Loughlin.
I was diagnosed with SCLE Lupus two years ago after having had a skin rash that covered my chest for about six months at a time over the previous four years. I eventually showed it to a dermatologist who took a biopsy and diagnosed SCLE Lupus. It is an autoimmune disorder which is mainly triggered by exposure to sunlight. This means I am extremely sun sensitive - even the winter sun is very dangerous for me.
When my lupus flares I get an ugly skin rash and am very unwell with aching joints and terrible fatigue. I have always been an outdoor person, a gardener and golfer and need to be able to get out and about. I am learning ways to do this. SP50 suncream doesn't work for me. It is messy, gets in my eyes and aggravates my skin.
I now wear UPF 50 leggings and long-sleeved tops with high collars or hoods, a big sunhat and sun gloves. I have searched the web for suppliers and have tried many but the one I find the best for me is Solbari's Sensitive range. The fabric is fantastic, no overheating.
Thanks Helena, for sharing your story with us and our Solbari Community.
The Solbari Team
Australian rules football coach and former player Jarryd Roughead took the time to answer our questions about his experience with skin cancer.
This blog post compares the protection offered by normal clothes and UPF clothes in order to understand the importance of sun protective clothing.