Hi, my name is Helena Mc Loughlin.
I was diagnosed with SCLE Lupus two years ago after having had a skin rash that covered my chest for about six months at a time over the previous four years. I eventually showed it to a dermatologist who took a biopsy and diagnosed SCLE Lupus. It is an autoimmune disorder which is mainly triggered by exposure to sunlight. This means I am extremely sun sensitive - even the winter sun is very dangerous for me.
When my lupus flares I get an ugly skin rash and am very unwell with aching joints and terrible fatigue. I have always been an outdoor person, a gardener and golfer and need to be able to get out and about. I am learning ways to do this. SP50 suncream doesn't work for me. It is messy, gets in my eyes and aggravates my skin.
I now wear UPF 50 leggings and long-sleeved tops with high collars or hoods, a big sunhat and sun gloves. I have searched the web for suppliers and have tried many but the one I find the best for me is Solbari's Sensitive range. The fabric is fantastic, no overheating.
Thanks Helena, for sharing your story with us and our Solbari Community.
The Solbari Team
Many of us see the ultraviolet (UV) index on weather reports and read about UV alerts at particular times of the day. But do you know what it actually means and how it affects you?
There are two main types of UV rays and both cause damage to skin cells. Ultraviolet light is a form of radiation invisible to the human eye. Ultraviolet wavelengths of sunlight are made up of UVB, which has shorter wavelengths and higher energy, and UVA, which has longer wavelengths and lower energy.