Having vitiligo means my skin is seriously sensitive to the sun, making my daily life very difficult to enjoy. I have to wear a high SPF 50+ sun protection cream all year round, but no matter what sun protection I use, my skin will burn after 5 minutes in the sun.
Vitiligo is very hard to live with and it has stopped me from enjoying everyday life. I used to love the outdoors: walking, gardening, walking the dog and going to the beach.
I have melanoma stage 3c, caused by sunbed use.
I have no idea how long I have to live, as it's extremely sneaky and aggressive. The area of skin that my radiotherapy treatment was targeted at is now extremely sensitive to perfumes and new creams/lotions, and I have been diagnosed with Jessner lymphocytic infiltrate. When my skin reacts, it's extremely itchy with red scaly patches.
I have an autoimmune skin condition called vitiligo. It began when I was in my late teens, in small stages at first, around eyes, mouth, and joints. It was very damaging psychologically, as my skin, which was olive in tone, began to show pure white patches. It was quite dramatic, very frightening, and often these patches appeared overnight.
This condition affects my day-to-day living in that my skin will burn with just a few minutes of sunlight. I could wear sunblock, but do not appreciate the way it feels, and it doesn’t always work well.
I have systemic lupus erythematosus, SLE for short. UV rays trigger an autoimmune response that can affect a huge variety of things, to include vital organs such as the heart, kidneys, lungs and brain, as well as skin.
Externally you see a rash, known as a “butterfly” rash due to its shape, but the more dangerous issue from these flare-ups is internal organ damage caused by my body’s immune system thinking my own body is the enemy and attacking it.
To help prevent flare-ups I have to take a variety of steps daily, and one of the most challenging things has been figuring out how to reduce UV exposure as much as humanly possible. It's harder than you think, too.