Hello! I’m Hannah.
I’m 23 years old and I have a rare skin condition called hydroa vacciaforme.
Hydroa vacciaforme is a photosensitive condition and is triggered by the UVA and UVA rays of the sun. It makes my skin blister and boil, leaving behind scars and thin areas of skin.
There is no cure for my condition and no treatments; it’s so rare that there are only 6 people in the UK that have it, myself being the worst one and also the patient that has had it the longest!
I’ve had this condition for 17 years and in that time, unfortunately, I have found nothing that helps my skin long term. However UV sun protection clothing is helpful to protect my head and my hands!
Thank you Hannah for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.
The Solbari Team
Many of us see the ultraviolet (UV) index on weather reports and read about UV alerts at particular times of the day. But do you know what it actually means and how it affects you?
There are two main types of UV rays and both cause damage to skin cells. Ultraviolet light is a form of radiation invisible to the human eye. Ultraviolet wavelengths of sunlight are made up of UVB, which has shorter wavelengths and higher energy, and UVA, which has longer wavelengths and lower energy.