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Skin Health Series: Hannah's Story

What is your name?

Hello! I’m Hannah.

What is your skin condition?

I’m 23 years old and I have a rare skin condition called hydroa vacciaforme.

Hydroa vacciaforme is a photosensitive condition and is triggered by the UVA and UVA rays of the sun. It makes my skin blister and boil, leaving behind scars and thin areas of skin.

How does your skin condition affect your day-to-day living?

There is no cure for my condition and no treatments; it’s so rare that there are only 6 people in the UK that have it, myself being the worst one and also the patient that has had it the longest!

What you have found to alleviate it?

I’ve had this condition for 17 years and in that time, unfortunately, I have found nothing that helps my skin long term. However UV sun protection clothing is helpful to protect my head and my hands!

Thank you Hannah for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.

The Solbari Team

Also in Solbari Blog

Your Story Series: Meet Jen

It's all about awareness really, and people are aware, they just need to take it seriously and notice it more. Knowing the consequences and being mindful of how easy it is to avoid, life in general, being out and about, is much easier, happier and less painful.

Your Story Series: Meet Gary

I first discovered skin problems via a visit to a skin cancer clinic in our district twenty years ago and have had lots of varying treatments since, including surgery. The common reference was “this damage was done when you were in your teens and lived in the surf."

Which countries have the highest rates of skin cancer?

Australia is ranked 1st for melanoma incidence rates at 33.6 per 100,000 of population. This has equated to between 1,400 and 2,000 Australians dying from melanoma per annum in recent times.