Hello! I’m Hannah.
I’m 23 years old and I have a rare skin condition called hydroa vacciaforme.
Hydroa vacciaforme is a photosensitive condition and is triggered by the UVA and UVA rays of the sun. It makes my skin blister and boil, leaving behind scars and thin areas of skin.
There is no cure for my condition and no treatments; it’s so rare that there are only 6 people in the UK that have it, myself being the worst one and also the patient that has had it the longest!
I’ve had this condition for 17 years and in that time, unfortunately, I have found nothing that helps my skin long term. However UV sun protection clothing is helpful to protect my head and my hands!
Thank you Hannah for helping raise awareness for skin conditions by sharing your story with us and our Solbari Community.
The Solbari Team
Your skin is your largest organ and has a long memory. Sun exposure and ultraviolet (UV) damage is cumulative throughout your life. Research shows that sun damage contributes to more than 90% of wrinkles, brown spots, premature skin ageing as well as precancerous and cancerous skin lesions.
Limiting sun exposure is very important. As the UV rays cause the most damage to the skin.
It often takes many years and sometimes decades for the effects to become visible.
But the good news is that taking care of your skin form now onwards may be able to help you to reduce the probability of skin cancers and minimise skin ageing.
Dermatologists recommend UPF50+ sun protective clothing and a broad brim sun hat as the first line of defence against premature skin ageing, sunburn, skin cancer and melanoma. Sunscreen with a SPF rating above 30 should be applied to skin that is directly exposed to the sun.